Thanks for voicing my sentiments exactly! But do you know what....if you're not chronically ill, if you've never suffered much pain, if you've always been pretty healthy ........ then YOU HAVEN'T GOT A CLUE WHAT IT'S LIKE! People really cannot ...just cannot understand. Lucky bastards.
You took the words out of my mouth ... I don't want to be packed away in an "inspiring" box. I want someone to give me a space to scream and rant in, not a place where I share my feelings and get told things like, "Oh, I know what you mean. I get really tired sometimes..." NO YOU FUCKING DON'T, NOT LIKE THIS!
I even had a carer say to me once, " Ooh, you are lucky - I wish I could stay in bed all day." A CARER.
I have always had a problem with the narrative around illness and “bravery”. We hear this a lot with cancer. “Bravely battling cancer.” It’s not a choice: the person may be stoic, positive, etc. “Courage is knowing it might hurt and doing it anyway… Stupidity is the same. And that’s why life is so hard.” Jeremy Goldberg
Thank you Emma. I really agree with so much of what you say. There's nothing brave about having and living with Parkinson’s (or indeed any other disease/condition/disability) and I’ve always found it a ridiculous idea.
I think I sometimes do or say ‘brave’ things - walking into a room of people I’ve never met, to play football with them, for example - but any courage was nothing to do with they or I having PD. Sometimes I write something that feels brave to put out there.
I’m absolutely sure that you also do and say many brave things, but it won’t be obvious to us readers which they are.
Thanks for voicing my sentiments exactly! But do you know what....if you're not chronically ill, if you've never suffered much pain, if you've always been pretty healthy ........ then YOU HAVEN'T GOT A CLUE WHAT IT'S LIKE! People really cannot ...just cannot understand. Lucky bastards.
Get well soon dear!! Sending love ❤
You took the words out of my mouth ... I don't want to be packed away in an "inspiring" box. I want someone to give me a space to scream and rant in, not a place where I share my feelings and get told things like, "Oh, I know what you mean. I get really tired sometimes..." NO YOU FUCKING DON'T, NOT LIKE THIS!
I even had a carer say to me once, " Ooh, you are lucky - I wish I could stay in bed all day." A CARER.
Hope you kick Covid's bum soon!
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I have always had a problem with the narrative around illness and “bravery”. We hear this a lot with cancer. “Bravely battling cancer.” It’s not a choice: the person may be stoic, positive, etc. “Courage is knowing it might hurt and doing it anyway… Stupidity is the same. And that’s why life is so hard.” Jeremy Goldberg
Thank you Emma. I really agree with so much of what you say. There's nothing brave about having and living with Parkinson’s (or indeed any other disease/condition/disability) and I’ve always found it a ridiculous idea.
I think I sometimes do or say ‘brave’ things - walking into a room of people I’ve never met, to play football with them, for example - but any courage was nothing to do with they or I having PD. Sometimes I write something that feels brave to put out there.
I’m absolutely sure that you also do and say many brave things, but it won’t be obvious to us readers which they are.
Rob
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